Tag: tourette syndrome

Outcome after a child starts ticcing

Results from our prospective study of children with recent-onset tics were just published. Read all about it here: https://link.growkudos.com/1f99dltmtj4

Tourette survey May 1–3

We were asked to share this request: Pillar Patient Advocates has been asked to help with finding 3-4 parents/caregivers of children under 18, and 1-2 adults over 18 currently on a prescription treatment for Tourette Syndrome who are interested in participating in a 60 minute phone/web interview to share their experiences and opinions about treatments. […]

April TAA chapter activity

Learn to Curl like an Olympian!! -Just a reminder that there are 2 weeks left before our April Curling Event. Bring your  siblings and friends, and Come Join Us!! Missouri Tourette Chapter Curling Event WHEN: Saturday, April 15, 6:30 – 9:15 PM WHERE: Creve Coeur Ice Arena 11400 Olde Cabin Rd., Creve Coeur, MO 63141 […]

How many people would be interested in a commercial tic treatment device?

Neurotherapeutics Solutions Ltd., a start-up from our colleagues at the University of Nottingham (U.K.), is developing a wristwatch-like device for treating tics. Potential investors, however, tend to think that Tourette only affects kids, that only people with severe tics would want to buy such a device, and so on, so they figure the market would […]

Distinguishing between compulsions and complex tics

The answer is not simple. Often the answer is obvious–always washing your hands 5 times is a compulsion. Yelling “What’s that?!” many times a day because it just feels like you have to is a complex tic. Even when the phenomenology is less classic, one can usually tell them apart by asking why the person […]

Prognosis of tic disorders

We summarized what is known about the course of tic disorders over time, including what we know about predicting outcome in individual patients. Last year we published a review article that summarizes what is known about the important and common question, “hey, doc, will the tics get worse or go away?” Some of this information […]

A new treatment for TS (kind of)

Here’s a press release from the UK national health authority describing very positive interim results of the ORBIT study in England. It provides the best evidence yet for the efficacy of a behavior therapy called exposure and response prevention (ERP) for tics. ERP has been around for a long time, and is still a first-line […]

New research on tic timing

Tics happen in a fractal time pattern, even only a few months after tics begin. New work from our lab confirms that tics happen in a time pattern that is fractal. We explain the meaning of those words, the results, and their possible implications on this page. A press release from Wash.U. is available here. […]

International Tourettes Day

June 7 is International Tourettes Day! Today, we celebrate individuals and their families who have been impacted by Tourettes. Spread the word to your family and friends! To learn more about the global and individual impact of Tourette Syndrome, you can visit the YouTube channel of Tics and Tourettes across the Globe (TTAG).

Journal special issue on Tourette syndrome

This post is more for our academic colleagues, but others of you may also find it interesting. Dr. Deanna Greene, now at UCSD, and I are guest editors for a special issue of the Journal of Clinical Medicine on “clinical and pathophysiological studies of Tourette syndrome.” We invite manuscript submissions relevant to that topic. The […]

TAA statement on PANDAS

The Tourette Association of America’s PANDAS/PANS Workgroup has issued a public statement about PANDAS. It succinctly summarizes the current state of evidence about this controversial diagnosis. A recommended read for anyone interested.

Tic Talk 2020 initial survey results

Below is a brief summary of the results from the first 21 people to take the survey. If you haven’t already responded, we’d love your input to help us design Tic Talk 2020 by taking this short 5-question survey: https://www.surveymonkey.com/r/8XT6Z7K Topics you are interested in: Tics and school: 76% How psychological factors or situations influence tics: […]

Help us plan content for Tic Talk 2020

Tic Talk 2020 is on! Saturday, May 2, 2020, at Wash. U. School of Medicine. We want to hear from you about what topics we should cover. Please take this short 5-question survey: https://www.surveymonkey.com/r/8XT6Z7K Thank you!

Online survey for anyone 18+ diagnosed with TS

Sharing an online survey about eating and dietary behaviors. From the University of Hertfordshire, UK,  via Tourettes Action. For individuals aged 18 or over from all over the world. To find out more or to take part, click here.

New web address!

The web page for the TAA Center of Excellence at Washington University in St. Louis is now available at tics.wustl.edu—easier to remember, we hope.

TAA Center of Excellence designation

In June of this year, the Tourette Association of America chose Washington University as a Center of Excellence! This designation recognizes the longstanding breadth and depth of expertise in patient care and research of our colleagues here at WUSTL and of the Greater Missouri TAA chapter. Hooray and thank you! However, we know we haven’t […]

Results from chapter grants survey, 10/2018

The results are in! We collected 33 votes (see “Oops” below to check whether your vote counted). We will use this information to guide our application to TAA. Stay tuned by connecting with the chapter or following the WashU Tics page on Facebook or @NewTics on Twitter.  Background The Tourette Association of America (TAA), in partnership with the […]

Thank you!

With Thanksgiving coming up this week, we would like to thank the many people who have been important to our work on Tourette syndrome and tic disorders here at Washington University. First, thank you to all of you who have been our patients over the years. You have taught us a great deal not only […]