We were asked to share this request: Pillar Patient Advocates has been asked to help with finding 3-4 parents/caregivers of children under 18, and 1-2 adults over 18 currently on a prescription treatment for Tourette Syndrome who are interested in participating in a 60 minute phone/web interview to share their experiences and opinions about treatments. […]
Author: Kevin J. Black, M.D.
Dr. Black is a movement disorders neuropsychiatrist who has cared for patients at the Movement Disorders Center at Washington University in St. Louis for over 20 years. He is listed in Best Doctors in America®. Dr. Black uses innovative brain imaging methods to study movement disorders including Tourette syndrome, the effects of dopamine on the brain, and how the precise location of deep brain stimulation (DBS) changes its clinical effects.
School counselors, ask us questions.
You can ask us questions about Tourette syndrome and other tic disorders by replying to this post. If one of you has a question, you probably aren’t the only one with that question, so we will post it and an answer here so other counselors may benefit, too. If you don’t want your name to […]
Survey on rage attacks in youth with Tourette syndrome
TAA awards our Center of Excellence a Community Engagement Grant
The Tourette Association of America awarded the WUSTL Center of Excellence a Community Engagement Grant titled “Training the trainers: Empowering school counselors for outreach to teachers and students.” This project focuses on educator education in the greater St. Louis area. Specifically, we intend to involve a hitherto-underappreciated resource in schools. School counselors are involved in teaching […]
FNSD talk, 2023-11-16
I gave a talk on 16 November 2023 to the St. Louis Suburban School Nurses’ Association; they had requested a talk on functional neurological symptoms. Here’s the PowerPoint show from that talk. Other resources For patients and clinicians For clinicians Medical literature FNSD Functional tics
April TAA chapter activity
Learn to Curl like an Olympian!! -Just a reminder that there are 2 weeks left before our April Curling Event. Bring your siblings and friends, and Come Join Us!! Missouri Tourette Chapter Curling Event WHEN: Saturday, April 15, 6:30 – 9:15 PM WHERE: Creve Coeur Ice Arena 11400 Olde Cabin Rd., Creve Coeur, MO 63141 […]
Clinical guide to functional tic-like symptoms
This press release is from the University of Florida, home to first author Dr. Irene Malaty. The senior author, Dr. Black, is from here at Washington University. The article is free to read online and has been seen by over 600 people. Here’s a brief summary in lay terms.
How many people would be interested in a commercial tic treatment device?
Neurotherapeutics Solutions Ltd., a start-up from our colleagues at the University of Nottingham (U.K.), is developing a wristwatch-like device for treating tics. Potential investors, however, tend to think that Tourette only affects kids, that only people with severe tics would want to buy such a device, and so on, so they figure the market would […]
Prognosis of tic disorders
We summarized what is known about the course of tic disorders over time, including what we know about predicting outcome in individual patients. Last year we published a review article that summarizes what is known about the important and common question, “hey, doc, will the tics get worse or go away?” Some of this information […]
A new treatment for TS (kind of)
Here’s a press release from the UK national health authority describing very positive interim results of the ORBIT study in England. It provides the best evidence yet for the efficacy of a behavior therapy called exposure and response prevention (ERP) for tics. ERP has been around for a long time, and is still a first-line […]
New research on tic timing
Tics happen in a fractal time pattern, even only a few months after tics begin. New work from our lab confirms that tics happen in a time pattern that is fractal. We explain the meaning of those words, the results, and their possible implications on this page. A press release from Wash.U. is available here. […]
New review articles on Tourette syndrome
Here are some review articles on Tourette syndrome that we published this year. The newest was published just today. Keisuke Ueda and Kevin J. Black: Recent progress on Tourette syndrome. Faculty Reviews 2021; 10:70. doi: 10.12703/r/10-70. Keisuke Ueda and Kevin J. Black: A Comprehensive Review of Tic Disorders in Children. Journal of Clinical Medicine 2021; 10(11):2479. doi: 10.3390/jcm10112479. Kevin J. […]
Suggestions for engaging with the media
Dr. Seonaid Anderson, who knows a lot about Tourette syndrome, has written some suggestions for people with tics to consider before agreeing to be recorded for e.g. a news story. These are good, thought-provoking points to consider before agreeing to such a situation. As she points out, many people with TS have had a good […]
New review article on Tourette syndrome
Drs. Keisuke Ueda and Kevin Black just published a review article on Tourette syndrome. It is freely available here.
Journal special issue on Tourette syndrome
This post is more for our academic colleagues, but others of you may also find it interesting. Dr. Deanna Greene, now at UCSD, and I are guest editors for a special issue of the Journal of Clinical Medicine on “clinical and pathophysiological studies of Tourette syndrome.” We invite manuscript submissions relevant to that topic. The […]
Cannabidiol and the DEA
The US FDA approved Epidiolex® (cannabidiol, or CBD) for certain seizure syndromes in June, 2018, and in November, 2018, the DEA rescheduled it as a Schedule V controlled substance (the least restrictive). This will greatly facilitate clinical use and clinical trials of CBD in the U.S. Note that there is little evidence at this point […]
Can median nerve stimulation reduce tics?
A fascinating publication from the University of Nottingham describes a non-invasive method that may reduce tics. The idea is that rhythmic input to a brain region can entrain that region to fire in synchrony with the input, and some rhythmic firing patterns seem to inhibit movement. The stimulation was delivered by generating a small electrical […]
Cool research result from the New Tics study
We just published results showing that brain structure, measured by MRI when we first met children with recent onset of tics, helped predict how much improvement there would be in a clinical rating scale for tics when the children returned at the 1-year anniversary of their first tic. Read more about it either here, written […]
Tic Talk 2020 final survey results
Twenty-seven people responded to our survey asking people what content they wanted for our Tic Talk 2020 meeting (May 2, here at Wash. U.). Thank you! Most respondents (81%) were family members of someone with tics. And … the envelope, please! Here are the main results: Topics you are interested in: Tics at school, working […]
Disappointing results from VMAT2 inhibitors
Teva Pharmaceuticals recently announced that in a couple of studies, deutetrabenazine did not prove statistically superior to placebo for treatment of Tourette syndrome in youth.* This honestly comes as a big surprise to me (and of course to the sponsor). Although without controlled trial evidence, its parent drug tetrabenazine had been used for tics for […]
TAA statement on PANDAS
The Tourette Association of America’s PANDAS/PANS Workgroup has issued a public statement about PANDAS. It succinctly summarizes the current state of evidence about this controversial diagnosis. A recommended read for anyone interested.
Tic Talk 2020 initial survey results
Below is a brief summary of the results from the first 21 people to take the survey. If you haven’t already responded, we’d love your input to help us design Tic Talk 2020 by taking this short 5-question survey: https://www.surveymonkey.com/r/8XT6Z7K Topics you are interested in: Tics and school: 76% How psychological factors or situations influence tics: […]
Help us plan content for Tic Talk 2020
Tic Talk 2020 is on! Saturday, May 2, 2020, at Wash. U. School of Medicine. We want to hear from you about what topics we should cover. Please take this short 5-question survey: https://www.surveymonkey.com/r/8XT6Z7K Thank you!
Online survey for anyone 18+ diagnosed with TS
Sharing an online survey about eating and dietary behaviors. From the University of Hertfordshire, UK, via Tourettes Action. For individuals aged 18 or over from all over the world. To find out more or to take part, click here.
New web address!
The web page for the TAA Center of Excellence at Washington University in St. Louis is now available at tics.wustl.edu—easier to remember, we hope.
Safety of antipsychotic medications
A new publication reports on antipsychotic medications in people with schizophrenia. Of course schizophrenia is very different from tic disorders. Nevertheless, the medications best proven to reduce tic severity are also used as antipsychotics. In both populations concerns arise about the long-term impacts of physical side effects of antipsychotics, especially with regards to obesity and […]
Interesting retrospective study of Provisional Tic Disorder
I just saw this abstract from 2 years ago. The authors looked at back at the medical history at initial presentation from 60 children with Tourette syndrome. Most (60%) had multiple motor tics during their “first tic episode” (a term not defined in the abstract). Children who had phonic tics initially were older.
TAA Center of Excellence designation
In June of this year, the Tourette Association of America chose Washington University as a Center of Excellence! This designation recognizes the longstanding breadth and depth of expertise in patient care and research of our colleagues here at WUSTL and of the Greater Missouri TAA chapter. Hooray and thank you! However, we know we haven’t […]
The urge to tic in Tourette syndrome
Our paper on “the urge to blink in Tourette syndrome” is out. Brief explanation here Full text here
Tics in ADHD
ADHD is really common in people with tics: at least 50% of children with tics also have ADHD [1]. What about the other side? I mean, how common are tics in children with ADHD? Until recently, I would have said, “well, more common than in kids without ADHD.” That’s true, but recently I have begun […]
“I’ve found the answer to TS,” or why science isn’t faster
Recently someone with TS wrote me to say that he had discovered a trigger for tics and a potential treatment that might apply to others. I applaud his careful observations and willingness to share. But how can we move this observation forward? After all, numerous potential cures to TS have been proposed, ranging from antibiotics […]
Treating tics: an overview
What can I do for my child with tics? The first question is whether s/he needs treatment. Most children probably don’t. All of our current treatments just reduce the symptoms. A key question is, are the tics really interfering (now) with schoolwork or friendship, or interfering with other students’ learning? If so, then that’s a […]
Results from chapter grants survey, 10/2018
The results are in! We collected 33 votes (see “Oops” below to check whether your vote counted). We will use this information to guide our application to TAA. Stay tuned by connecting with the chapter or following the WashU Tics page on Facebook or @NewTics on Twitter. Background The Tourette Association of America (TAA), in partnership with the […]
TicTrainer software description
We have just published a revised description of the software that runs TicTrainer.com, which is meant to help people practice tic suppression in a video-game-like format with help from a third party observer (like a parent or clinician). Here is further information.
Which children can suppress tics best?
See this link for information about recently-published research from Wash.U. combined with several other research groups.
“Rage attacks” in children with tics
A couple of our recent study volunteers had serious problems with what you could variously call sudden tantrums, explosive outbursts, or brief violence. Of course, kids with tics can have all the problems anyone else can have. But about 1 in 5 children with Tourette syndrome have experiences that have been called “rage attacks.” These rage […]
ADHD medications and tics
Recently, two different families asked me about whether it was safe for their child with tics to take medication for ADHD. Short answer: yes, it’s safe. Here’s the long answer. ADHD is very common in children with tics—nearly half of children with Tourette syndrome (TS) have ADHD. So the question comes up often. First I […]
Is it OK to talk with my child about the tics?
In our study of children whose tics began just over the past few months, I have encountered several parents who have been hesitant to have any discussion at all with their child about the tics. Here are my thoughts on the subject. Behavior therapy experts recommend creating a “tic-neutral environment.”1 In part, this means that […]
Thank you!
With Thanksgiving coming up this week, we would like to thank the many people who have been important to our work on Tourette syndrome and tic disorders here at Washington University. First, thank you to all of you who have been our patients over the years. You have taught us a great deal not only […]