Twenty-seven people responded to our survey asking people what content they wanted for our Tic Talk 2020 meeting (May 2, here at Wash. U.). Thank you! Most respondents (81%) were family members of someone with tics.
And … the envelope, please! Here are the main results:
Topics you are interested in:
- Tics at school, working with schools, IEPs: 70%
- How psychological factors or situations influence tics: 70%
- Research on what causes tic disorders and/or how the brain creates tics: 52%
- Management of ADHD: 52%
- Non-medication tic treatments: 52%
- Management of OCD: 48%
- Marijuana and related drugs for tics: 44%
- Online treatment tools for tics: 44%
- “Ask the experts” session: 33%
Topics you want your doctor to hear about:
- Management of symptoms other than tics: 78%
- Proven treatments for tics: 67%
- New or upcoming medications for tics: 59%
- Tics at school, working with schools, IEPs: 59%
- Research on what causes tic disorders and/or how the brain creates tics: 48%
- CBIT training: 48%
- Non-medication treatments for tics: 44%
Thank you all for your responses! Based on these answers, I discarded one talk I was thinking of doing (intro to tic disorders), and invited an expert on managing OCD in TS.
Please mark your calendar for Tic Talk 2020, May 2 here at Wash. U., and invite friends, family, your doctor, school staff, or anyone else you feel will benefit. We’ll have a registration form up in a couple of weeks at tics.wustl.edu . Hope to see you there!