Below is a brief summary of the results from the first 21 people to take the survey. If you haven’t already responded, we’d love your input to help us design Tic Talk 2020 by taking this short 5-question survey: https://www.surveymonkey.com/r/8XT6Z7K Topics you are interested in: Tics and school: 76% How psychological factors or situations influence tics: […]
Tic Talk 2020 is on! Saturday, May 2, 2020, at Wash. U. School of Medicine. We want to hear from you about what topics we should cover. Please take this short 5-question survey: https://www.surveymonkey.com/r/8XT6Z7K Thank you!
Sharing an online survey about eating and dietary behaviors. From the University of Hertfordshire, UK, via Tourettes Action. For individuals aged 18 or over from all over the world. To find out more or to take part, click here.
A new publication reports on antipsychotic medications in people with schizophrenia. Of course schizophrenia is very different from tic disorders. Nevertheless, the medications best proven to reduce tic severity are also used as antipsychotics. In both populations concerns arise about the long-term impacts of physical side effects of antipsychotics, especially with regards to obesity and […]
We are now enrolling children with TS, ages 6-17, in a new treatment study. The research study will compare an investigational product, EBS-101 a.k.a. ecopipam, to a placebo (inactive substance). Further information about the study is available at this site, where you can complete a pre-screening questionnaire, or at ClinicalTrials.gov. If you have questions, or to […]
I just saw this abstract from 2 years ago. The authors looked at back at the medical history at initial presentation from 60 children with Tourette syndrome. Most (60%) had multiple motor tics during their “first tic episode” (a term not defined in the abstract). Children who had phonic tics initially were older.
In June of this year, the Tourette Association of America chose Washington University as a Center of Excellence! This designation recognizes the longstanding breadth and depth of expertise in patient care and research of our colleagues here at WUSTL and of the Greater Missouri TAA chapter. Hooray and thank you! However, we know we haven’t […]
Our paper on “the urge to blink in Tourette syndrome” is out. Brief explanation here Full text here
ADHD is really common in people with tics: at least 50% of children with tics also have ADHD . What about the other side? I mean, how common are tics in children with ADHD? Until recently, I would have said, “well, more common than in kids without ADHD.” That’s true, but recently I have begun […]
Recently someone with TS wrote me to say that he had discovered a trigger for tics and a potential treatment that might apply to others. I applaud his careful observations and willingness to share. But how can we move this observation forward? After all, numerous potential cures to TS have been proposed, ranging from antibiotics […]
What can I do for my child with tics? A mother of a child with tics emailed me to ask about treatment options, including information about medical cannabis and a dental device that some tic patients have tried. Here are my current “big picture” thoughts about this question. The first question is whether s/he needs […]
The results are in! We collected 33 votes (see “Oops” below to check whether your vote counted). We will use this information to guide our application to TAA. Stay tuned by connecting with the chapter or following the WashU Tics page on Facebook or @NewTics on Twitter.