Tic Talk 2020 final survey results

Twenty-seven people responded to our survey asking people what content they wanted for our Tic Talk 2020 meeting (May 2, here at Wash. U.). Thank you! Most respondents (81%) were family members of someone with tics. And … the envelope, please! Here are the main results: Topics you are interested in: Tics at school, working […]

Tic Talk 2020 initial survey results

Below is a brief summary of the results from the first 21 people to take the survey. If you haven’t already responded, we’d love your input to help us design Tic Talk 2020 by taking this short 5-question survey: https://www.surveymonkey.com/r/8XT6Z7K Topics you are interested in: Tics and school: 76% How psychological factors or situations influence tics: […]

Help us plan content for Tic Talk 2020

Tic Talk 2020 is on! Saturday, May 2, 2020, at Wash. U. School of Medicine. We want to hear from you about what topics we should cover. Please take this short 5-question survey: https://www.surveymonkey.com/r/8XT6Z7K Thank you!

New treatment study for children with Tourette syndrome

We are now enrolling children with TS, ages 6-17, in a new treatment study. The research study will compare an investigational product, EBS-101 a.k.a. ecopipam, to a placebo (inactive substance). Further information about the study is available at this site, where you can complete a pre-screening questionnaire, or at ClinicalTrials.gov. If you have questions, or to […]

TAA Center of Excellence designation

In June of this year, the Tourette Association of America chose Washington University as a Center of Excellence! This designation recognizes the longstanding breadth and depth of expertise in patient care and research of our colleagues here at WUSTL and of the Greater Missouri TAA chapter. Hooray and thank you! However, we know we haven’t […]

Treating tics: an overview

What can I do for my child with tics? A mother of a child with tics emailed me to ask about treatment options, including information about medical cannabis and a dental device that some tic patients have tried. Here are my current “big picture” thoughts about this question. The first question is whether s/he needs […]

TicTrainer software description

We have just published a revised description of the software that runs TicTrainer.com, which is meant to help people practice tic suppression in a video-game-like format with help from a third party observer (like a parent or clinician). Here is further information.

“Rage attacks” in children with tics

A couple of our recent study volunteers had serious problems with what you could variously call sudden tantrums, explosive outbursts, or brief violence. Of course, kids with tics can have all the problems anyone else can have. But about 1 in 5 children with Tourette syndrome have experiences that have been called “rage attacks.” These rage […]

ADHD medications and tics

Recently, two different families asked me about whether it was safe for their child with tics to take medication for ADHD. Short answer: yes, it’s safe. Here’s the long answer. ADHD is very common in children with tics—nearly half of children with Tourette syndrome (TS) have ADHD. So the question comes up often. First I […]

Is it OK to talk with my child about the tics?

In our study of children whose tics began just over the past few months, I have encountered several parents who have been hesitant to have any discussion at all with their child about the tics. Here are my thoughts on the subject. Behavior therapy experts recommend creating a “tic-neutral environment.”1 In part, this means that […]