We just published results showing that brain structure, measured by MRI when we first met children with recent onset of tics, helped predict how much improvement there would be in a clinical rating scale for tics when the children returned at the 1-year anniversary of their first tic. Read more about it either here, written […]
The Tourette Association of America’s PANDAS/PANS Workgroup has issued a public statement about PANDAS. It succinctly summarizes the current state of evidence about this controversial diagnosis. A recommended read for anyone interested.
Below is a brief summary of the results from the first 21 people to take the survey. If you haven’t already responded, we’d love your input to help us design Tic Talk 2020 by taking this short 5-question survey: https://www.surveymonkey.com/r/8XT6Z7K Topics you are interested in: Tics and school: 76% How psychological factors or situations influence tics: […]
Tic Talk 2020 is on! Saturday, May 2, 2020, at Wash. U. School of Medicine. We want to hear from you about what topics we should cover. Please take this short 5-question survey: https://www.surveymonkey.com/r/8XT6Z7K Thank you!
The web page for the TAA Center of Excellence at Washington University in St. Louis is now available at tics.wustl.edu—easier to remember, we hope.
We are now enrolling children with TS, ages 6-17, in a new treatment study. The research study will compare an investigational product, EBS-101 a.k.a. ecopipam, to a placebo (inactive substance). Further information about the study is available at this site, and at ClinicalTrials.gov. If you have questions, or to enroll, please contact us: Hannah Stubblefield RN314 […]
In June of this year, the Tourette Association of America chose Washington University as a Center of Excellence! This designation recognizes the longstanding breadth and depth of expertise in patient care and research of our colleagues here at WUSTL and of the Greater Missouri TAA chapter. Hooray and thank you! However, we know we haven’t […]
Our paper on “the urge to blink in Tourette syndrome” is out. Brief explanation here Full text here
A couple of our recent study volunteers had serious problems with what you could variously call sudden tantrums, explosive outbursts, or brief violence. Of course, kids with tics can have all the problems anyone else can have. But about 1 in 5 children with Tourette syndrome have experiences that have been called “rage attacks.” These rage […]
With Thanksgiving coming up this week, we would like to thank the many people who have been important to our work on Tourette syndrome and tic disorders here at Washington University. First, thank you to all of you who have been our patients over the years. You have taught us a great deal not only […]